Laura Ashley has been supporting the amazing work of children’s charity Brainwave for the last two years. Since meeting the wonderful folk at Brainwave and seeing the inspirational work that they do at a charity event attended by the Countess of Wessex last year we felt impelled to dig deeper. We caught up with their Lead Educational Therapist Rebecca on the rewards of having a career with a cause…
Tell us about Brainwave…
Since 1982, Brainwave has worked with families to deliver individual home-based therapy and exercise programmes that help children with disabilities and developmental delay to achieve their potential.
That potential could be anything from a child walking or feeding themselves, to a child counting and forming sentences. Our attitude is ‘let’s see what can be done’, rather than what cannot. We employ a range of therapists including occupational therapists, physiotherapists and educationalists, enabling us to take a holistic approach.
We see a child for the first time over two days when we carry out an initial assessment. The parents are present for the whole time and the exercises are taught to them on day two. They then carry out their programme at home on a daily basis. When they return in 6 months time we are able to review their child’s progress and adapt their exercise sequence accordingly.
We now have three main centres around the country and run satellite clinics in Scotland and Ireland. We are an independent charity that receives no government funding, relying on donations to deliver our work. We currently have over 500 children on the programme across all of the centres.

Tell us about your role at Brainwave?
I am the Lead Educational Therapist at Brainwave and specialise in delivering cognitive therapy to the children we see at Brainwave. I assess their level of understanding as well as their abilities to maintain concentration. I have a wide range of resources available to me and make suggestions for simple devices that parents can make at home, such as flash cards which may assist their children in recognising colours, shapes or numbers. I check fundamental skills such as listening, memory, sorting and matching. With older children, I can assist them in literacy and numeracy as they may well have early gaps in their knowledge which has made further learning challenging. By breaking each subject down and ascertaining where the sticking points are, I can often help to make reading and numbers more accessible for them.

Rebecca working with flash cards
Children often have cognitive needs alongside physical ones so I will frequently work alongside a physiotherapist to create a holistic programme, so that parents can target all areas within one programme. Each programme is tailored to the individual so much of what we design is according to the age, interests and co-operation of each child! Above all, it is crucial that the activities are meaningful, achievable and fun for the children doing them and for the parents as well.

Rebecca assisting a physiotherapist
Behaviour and communication can be big areas of concern for the parents we see, so I offer help and advice to help combat some of the issues associated with these difficulties. I observe different behaviours and listen to parents describe the triggers; I can then suggest some strategies which may be useful in either dealing with the behaviours or aid in preventing them in the first place. Photographs, objects and signing can be very powerful communication tools for children with limited verbal skills and I guide parents on this, as appropriate.
Tell us about a typical day at Brainwave…
We start work at 9am each morning and every Monday we have a team meeting first thing. This enables us to discuss any concerns, upcoming children with particular needs or perhaps equipment issues. We are all given the opportunity to contribute to the meeting.
At 9.30am the families arrive and the therapist assigned to each family will greet them and conduct an informal discussion; if the child has been to us before, we will see how everything has been going and what the family’s current goals are. If the child is new to us, we will welcome the family and take a detailed history of the child’s birth and post birth information.
At about 10.30am the families are given a coffee break when they have the opportunity to mix with other families in the family area. Whilst this is taking place, the therapist who has just been speaking with the family hands over to the other therapist working with that family.
At 11am, the therapists (2 per child) collect the family and take them into a therapy room. We have 4 therapy rooms in our South West Centre, enabling us to see up to 4 children per day. Once the child has had a chance to become familiar with the new room, the therapists get to work assessing the child in terms of their physical, cognitive and sensory needs. If it is a reassessment, the therapists will look at the programme given to them last time and assess the level of progress. If it is the child’s first assessment, we are obviously starting from scratch and provide lots of explanations for the child’s parents, as we work.

A little boy being brushed to enhance his body awareness
At 1pm, the children and their parents have lunch whilst the therapists design their programme (usually with a computer keyboard in one hand and a rushed sandwich in the other!)
At 2pm, the family return from their break and the new exercises are explained to them. This includes the rationale behind each activity. We also discuss progress and developmental attainment. If it is a reassessment, the exercises will then be taught immediately and captured on DVD. If the family have never been before they will be staying overnight and the programme will be taught the next day.
At 3pm, it is time for hydrotherapy which most of the children love! Again only one child at a time tends to use the pool, accompanied by two therapists and their parents. There is, of course, always a trained person on the side of the pool in case of an emergency. Our pool in the South West is heated to 36 degrees and is such a fantastic facility. It really helps the children relax and sometimes they can achieve more in here than they can when ‘on land’.
By 4pm, the children are usually out of the pool and dressed. Just time to give out any new equipment and to make a new appointment for them to come back for more! The therapists then have a short while to make some notes ready for the child’s report before going home around 5pm.
Tell us about the most touching/rewarding Brainwave story that you have improved?
It is quite tricky to pick one thing as there have been so many over the years and every day is so different. However, one thing that sticks in my mind is working with a child called Ben who has great difficulties in concentrating. I was doing an assessment with him whilst he was sitting at a table and his parents were watching closely. We did activities such as matching, listening to instructions and hand function tasks. None of the activities I tried worked and Ben appeared not to understand what was being asked of him; consequently he was not able to achieve any of it, which was quite frustrating for all of us. Sometimes combining movement with focused work can make a difference and help children to pay attention. With that in mind, I changed rooms and asked Ben to lie on his tummy over a large peanut ball. I rocked him backwards and forward quickly providing some vigorous movement. I then tried exactly the same tasks as Ben had been presented with at the table. Ben was lying right over the ball with his head facing downwards and his hands on the floor for support. This time, Ben was more interested and was able to pay attention. He was able to do everything that was asked of him and I would not have known that had I not thought to try these things over the ball. His parents were present and so pleased and surprised with what Ben could achieve given the right opportunities. The key feedback was that the ball and the movement had given Ben’s body an increased sense of body awareness which had enabled him to concentrate more easily. It just goes to show how important the learning environment and physical positioning can be for optimal learning.

Ben on the ball with Rebecca’s colleague
How did you come to work for Brainwave and what drew you to work for them?
I trained as a teacher and have always known that I have wanted to work with children. However, I have to say that it was by accident that I got into working with children with special needs! After qualifying, I did some supply teaching for an agency and I remember them phoning me one day to see if I worked in special schools. Having only had experience in mainstream classrooms, I told them no, but I did say to call me if they were stuck. Well, they did ring me back as they could not find anyone else to fill in so I went along to the school not knowing what to expect. To be honest, I didn’t have a clue what I was doing and it was absolute mayhem! Despite this, I really enjoyed it and actually ended up working in this school for 2 years. I worked in one of the autistic units as an assistant rather than a teacher as it was a brilliant way to become more experienced. Although it was never meant to be permanent, I loved the fact that it was different from the mainstream and in many ways it was more relaxed allowing you to go with the needs and current interests of the child rather than being governed by the tight restraints of the curriculum. I then started to look for a job that would enable me to use my teaching skills but would also let me be creative and work under my own initiative. I read the advert for Brainwave and it seemed perfect! I still remember walking through the door for my interview and noticing the welcoming atmosphere. Everyone was so friendly and it was completely about the child rather than facts and figures.
I have now worked for the Brainwave South West Centre for just over 8 years and it is still so rewarding and varied. Every day is different and you get to meet some fantastic children and such inspirational parents.
We understand that The Countess of Wessex is a patron of Brainwave. How has her work helped Brainwave?
The Countess of Wessex first became involved with Brainwave when she opened our hydrotherapy pool in June of 2002. This was part of a visit she was making to Somerset in line with her official duties but she did express great interest in the work of Brainwave. She then agreed to become President of the Charity and took up the official position in February 2003. Since that time she has visited all three Brainwave Centres, hosted various receptions at Buckingham Palace and other venues and has appeared in a DVD featuring the work of Brainwave.
The Countess has met many families who have been following the Brainwave Programme over the years and her natural charm and personality has made her extremely popular with all the children she has come across during her visits to Brainwave. In addition, the publicity she has attracted for the charity has certainly raised the profile of Brainwave and as we approach the 10th Anniversary of her becoming our President we look forward to working with her in the coming years.

How have Laura Ashley helped Brainwave in the past?
Over the last 2 years Laura Ashley has been amazingly generous donating stock and buying samples they no longer require, to Brainwave. We have 21 charity shops across the South West of the UK and these fantastic quality donations have created great sales for us, and also give our stores and store staff a real buzz. When the Laura Ashley stock arrives our footfall increases noticeably! This has been a really fantastic inspiration.
Laura Ashley has also helped raise Brainwave’s profile amongst its customers via Laura Ashley’s Twitter account. When the singer and X-Factor runner up Olly Murs (a Brainwave Patron) broadcast a special BBC appeal last summer Laura Ashley tweeted about this to all their followers.
You can still see the BBC Lifeline Appeal video with Olly Murs here
How can our readers help support Brainwave’s work?
Readers can help in a variety of ways, through our shops or making financial donations. We have twenty one charity shops across the South West and good quality donations are always very welcome. Please see the list of our shops here
Of course readers may be interested in browsing our shops too to see what we have on offer.
Some people choose to become a Guardian to one of our children and sponsor them for as long as they remain on programme. The cost of a Guardianship for one child for twelve months of their Brainwave Therapy is £3,500. This can be extremely rewarding and a strong relationship is often formed between the parents and the Guardian, unless of course the Guardian wishes to remain anonymous to the family.
We have a website: www.brainwave.org.uk with a fundraising section and that gives further details of how people can help.